non-financial development institution
major organizer of congress and exhibition events
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Каримова Светлана
Svetlana Karimova
President, ‘Genetica’ National Association of Organizations of Patients with Rare Diseases
SPIEF 2018
Providing Medications to the Russian Population
The main problem is the federalization of the list of 24 rare diseases. Not everything should be federalized, but the most expensive ones of course should be, in order to make space for the 218 diseases that are on the waiting list