A socially oriented non-financial development institution and a major organizer of international conventions; exhibitions; and business, public, sporting, and cultural events. It was established in pursuance of a decision by the President of the Russian Federation.

The Roscongress Foundation is a socially oriented non-financial development institution and a major organizer of international conventions; exhibitions; and business, public, sporting, and cultural events. It was established in pursuance of a decision by the President of the Russian Federation.

The Foundation was established in 2007 with the aim of facilitating the development of Russia’s economic potential, promoting its national interests, and strengthening the country’s image. One of the roles of the Foundation is to comprehensively evaluate, analyse, and cover issues on the Russian and global economic agendas. It also offers administrative services, provides promotional support for business projects and attracting investment, and helps foster social entrepreneurship and charitable initiatives.

Each year, the Foundation’s events draw participants from 208 countries and territories, with more than 15,000 media representatives working on-site at Roscongress’ various venues. The Foundation benefits from analytical and professional expertise provided by 5000 people working in Russia and abroad. In addition, it works in close cooperation with 132 economic partners; industrialists’ and entrepreneurs’ unions; and financial, trade, and business associations from 70 countries worldwide.

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Svetlana Karimova

Svetlana Karimova

President, ‘Genetica’ National Association of Organizations of Patients with Rare Diseases
Biography
Svetlana Karimova, the President of the National Association of Patients with Rare Diseases Genetika, one of the largest umbrella patient organizations in Russia.

Bachelor of Sociology, Master of Public Health Administration and Management, graduate of the St. Petersburg State University of Economics majoring in Finance of Innovative Medicine. Founder and director of The Information Centre for Rare Diseases and Medicines for Orphans in Russia. Member of the Council for National Alliances of the International Association EURORDIS. Co-founder and Secretary General of the Eurasian Alliance for Rare Diseases. Member of the National Medical Chamber. Co-founder and board member of The National Council of Experts on Rare Diseases. Member of the Expert Council of the State Duma on Rare (orphan) diseases. Host of the TV show Vnimanie k Detalyam of the Internet channel MEDIAMETRICS. Director General of Centre for Innovative and Integration Programs and Technologies LLC.