A socially oriented non-financial development institution and a major organizer of international conventions, congress, exhibitions, business, social and sporting, public, and cultural events.

The Roscongress Foundation is a socially oriented non-financial development institution and a major organizer of international conventions; exhibitions; and business, public, sporting, and cultural events. It was established in pursuance of a decision by the President of the Russian Federation.

The Foundation was established in 2007 with the aim of facilitating the development of Russia’s economic potential, promoting its national interests, and strengthening the country’s image. One of the roles of the Foundation is to comprehensively evaluate, analyse, and cover issues on the Russian and global economic agendas. It also offers administrative services, provides promotional support for business projects and attracting investment, and helps foster social entrepreneurship and charitable initiatives.

Each year, the Foundation’s events draw participants from 208 countries and territories, with more than 15,000 media representatives working on-site at Roscongress’ various venues. The Foundation benefits from analytical and professional expertise provided by 5000 people working in Russia and abroad. In addition, it works in close cooperation with 160 economic partners; industrialists’ and entrepreneurs’ unions; and financial, trade, and business associations from 75 countries worldwide.

The Roscongress Foundation has Telegram channels in Russian (t.me/Roscongress), English (t.me/RoscongressDirect), and Spanish (t.me/RoscongressEsp). Official website and Information and Analytical System of the Roscongress Foundation: roscongress.org.

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Olga Germanenko

Olga Germanenko

Founder, Director, SMA Families Foundation
Biography
After Olga’s daughter was diagnosed with type 1 SMA in 2009, she discovered there was a lack of information around the disease in Russia, prompting her to share her experiences and research in SMA information. Together with other parents, she began collecting information on escort experience and research in this area in Russia and abroad, and in 2014 the SMA Families foundation was formed, a non-profit patient organization that today unites about 1200 patients with SMA. Among the main tasks of which is to promote the development of a comprehensive system of care and support for patients with SMA, access to information about the disease, high-quality medical and social care, and access to treatment. Access to timely and qualified care should be available to patients with SMA and rare diseases in general, regardless of age, characteristics or place of residence, the organization believes.

In carrying out these tasks, Olga also interacts with government authorities and medical experts. In particular, he is a member of the Expert Council on Rare (Orphan) Diseases of the Health Protection Committee of the State Duma of the Russian Federation, a member of the Expert Council of the Circle of Kindness Foundation, created by decree of the President of the Russian Federation in 2021. She actively participates in international activities in the field of SMA, is a member of the General Assembly of the European organization of SMA Europe, and also interacts with key intternational medical experts and researchers in the field.

As part of her work in the SMA Families Foundation, Olga works to organize support programs for families of SMA patients, organize the annual SMA Conference and other educational programs for both patient and medical community. She also bringing together SMA patient community efforts for the best future of each SMA individual and their families to ensure that the voice of SMA patients themselves is heard and accepted, especially if issues directly affecting the interests of patients with spinal muscular atrophy and other rare diseases.